Living with Cystinosis as an Adult: Community Insights
Now enrolling adults living with Cystinosis.
Adults age 18 and older who have been diagnosed with Cystinosis may be eligible to participate in a research study focused on understanding the lived experience and disease burden of adults with Cystinosis.
Participation includes:
- A web-based RSVP/survey
- A 60 – 90 minute interview
- Participants must be able to read, write, and communicate in English and meet the other study eligibility requirements.
Participants who complete the interview will receive a $200 honorarium.
Interested in participating?
Scan the QR code or click here to learn more and complete the RSVP.
