Partners

We are excited to announce our partnership with Patient Worthy. Rare Patient News. Well Done.

Patient Worthy has a commitment to include the rare disease adult narrative on their web page as we assist in continuing to drive the purpose for rare medicine.

See our information on Patient Worthy’s partner page here: https://patientworthy.com/partners-2-2-2-2-2/next-gen-cystinosis/

[Image description: large lowercase letters in bold black, then bold blue that read “patient worthy”. The tag line is in uppercase smaller letters in black “rare patient news well done”.]